Steering Group

The 3 Nations Dementia Working Group are a friendly group of people diagnosed with dementia who want to make a difference whilst we still can.

Co-Chair

Shelagh Robinson

I was diagnosed with Alzheimer’s eight years ago, and was fortunate to get a quick…

I was diagnosed with Alzheimer’s eight years ago, and was fortunate to get a quick and early diagnosis because I had a GP who really listened. I’ve been a volunteer for the Alzheimer’s Society since they sought me out following a Facebook post, and have discovered a talent for public speaking that is well used.

Like all those living with dementia, I am aware that I have a limited time to be active and want to do all I can to improve life for those who live with this devastating disease.

I am passionate about good support at the time of diagnosis, and good end of life care – and of the course all the rest of the journey too.

I’ve discovered it is possible to live a full rich life with dementia, rolling with the bad days and grateful for the wonderful support that the Alzheimer’s Society offers.

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Chair

Nigel Hullah

My name is Nigel and I live in Swansea; I was diagnosed with early onset…

My name is Nigel and I live in Swansea; I was diagnosed with early onset dementia in 2013. I have become fully engaged with social justice and human rights of people with Dementia as the slow drip of being considered a lesser person because of my Dementia was made obvious to me.

I don’t believe a diagnosis turns a vibrant hopeful person to someone who can’t see himself out the fog. It does happen sometimes but not always. I intend to hold people to account where I see social injustice applied to me and others with Dementia.

It is my intention to use political connections and the Human Rights and Equality Act to bring injustice into the light and work with likeminded people across all agencies and convince those who may be reluctant.

I will keep on doing as much as I possibly can, for as long as I can. My hope is that my progression will be slow and I will have lots more priceless experiences.

I don’t intended to go quietly. If we all work together we can effect change.

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Keith Oliver

In 2011, after coming to terms with my diagnosis of Alzheimer’s Disease aged 55, I…

In 2011, after coming to terms with my diagnosis of Alzheimer’s Disease aged 55, I was determined to try and use my remaining skills alongside drive and enthusiasm to further the cause of improving the lives of people affected now by dementia.

I developed the role of Kent and Medway’s Dementia Envoy and am also an Alzheimer’s Society Ambassador. I speak widely at conferences and have delivered the opening address at UK Dementia Congress. I serve on a wide range of national and international panels, steering groups and boards including the national Dementia Action Alliance.

Following the success of the book ‘Welcome to Our World’ in 2014, I published ‘Walk the Walk, Talk the Talk’, my memoirs, in November 2016, which aims to raise over £6000 for the Alzheimer’s Society and Innovations in Dementia. I am delighted to serve as a representative on the 3 Nations Dementia Working Group.

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Lesley Calvert

My name is Lesley Calvert I now live alone after the death of my husband…

My name is Lesley Calvert I now live alone after the death of my husband Sam eighteen months ago. I have two children and four grandchildren. I trained in Salford and worked most of this time as a district nurse in Salford, which I describe as “the best job on earth”. Around five years ago I noticed difficulties with my memory, and was eventually diagnosed with Alzheimer’s Disease, leading to my early retirement.

I chose to be proactive and now lead the Open Doors Dementia Service part of Greater Manchester Mental Health NHS Foundation Trust as their facilitator. Helping to support others who have recently been diagnosed and advise and support them in their dementia journey.

I have also joined many other local dementia initiatives including becoming a Dementia Associate with Salford University, I welcome opportunities to speak publicly about my experiences and aim to show that with the right support, you can live well with Dementia.

I am a member of the Dementia Champions Group in Salford as well as a member of the research group working with Open Doors and Manchester University, where a co research paper has been printed in the September/October Journal of Dementia Care, about our Neighbourhood and Dementia, and filmed by ITN which was shown in Chicago.

Being a part of the 3 Nations Working Group is an exciting new venture where I feel with my insight and understanding of living with dementia I can make a difference to instigate change for the good and wider network of people.

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Our Team

Head of Dementia Voice

Adele Leighton

I lead the Dementia Voice team, which focuses on involving people affected by dementia in…

I lead the Dementia Voice team, which focuses on involving people affected by dementia in work across the Alzheimer’s Society.

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Get In Touch

If you would like to get involved in any way, please do get in touch.

[email protected]

3 Nations Dementia Working Group
Care of Alzheimer's Society
43-44 Crutched Friars
London
EC3N 2AE